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KCNQ2 Cure Alliance Research Roundtable 2026
KCNQ2 Cure Alliance Research Roundtable 2026
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Session 4: Natural History and Registries
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Saturday
, September 19
1:15pm
CEST
Patient Registries vs. Natural History Studies: What’s the Difference?
Centro Congressi Federico II
Ingrid Scheffer, AO, MB, BS, PhD, FRACP, FAHMS, FAA • Anastasios Tzingounis, PhD
1:45pm
CEST
European KCNQ2 Research: Biomarkers, Natural History, and Therapeutic Development
Centro Congressi Federico II
Sarah Weckhuysen, MD, PhD • Anastasios Tzingounis, PhD
2:15pm
CEST
Natural History and Registries: A Call to Action
Centro Congressi Federico II
Isabella Brambilla • Maurizio Taglialatela, MD, PhD
2:45pm
CEST
Extended Discussion: KCNQ2 Coordination and Facilitating Global Collaboration on Registries and Natural History Studies
Centro Congressi Federico II
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Via Partenope, 36, Naples, Metropolitan City of Naples, Italy
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Centro Congressi Federico II
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Session 1: Mislocalization
Session 2: Therapeutics I
Session 3: Therapeutics II
Session 4: Natural History and Registries
Session 5: Special Topics
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Rohan Seth
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Saturday
, September 19
Venue
Centro Congressi Federico II
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Break
Breakfast
All
Subtype1
Subtype2
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Session 1: Mislocalization
Session 2: Therapeutics I
Session 3: Therapeutics II
Session 4: Natural History and Registries
Session 5: Special Topics
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